AFD Johnny Mendez family – update on son Quincey

February 9, 2022 – Update on Quincey, son of AFD Johnny Mendez

All,

I want to thank you all for continuing to support Johnny Mendez. You have provided countless meals, replaced a broken window, replaced a water heater, and created a Christmas that his boys will not forget.
See the update and request for additional help below. The new year brings new deductibles. If you have already donated, please do not feel obligated to donate again.

Tim Vandermeer

 

Hello,

I would like to take a moment to say thank you for all the support you have giving to Quincey and our family! In August of 2021, our world changed in a devastating way. CANCER. Our 10-year-old son had been having issues with walking for over a year prior to this. We had him looked at by every specialist and even did physical therapy. Nothing seemed to work. They would only look at the leg and not higher up. They all just kept thinking it was muscle. One morning he woke up struggling with breathing and in a lot of pain. We took him to the doctor, and he wanted to get some scans immediately. That was Friday the 6th. Saturday morning at 8 am we were called and told to go straight to the Dell Children Hospital. We made it there in what seems to have been 30 minutes. There we met the Oncologist. That word says it all. She listened to him and decided that she wanted to do a full scan.

This is when we finally got all the details and explanations and the answers we have been looking for. The images were displayed on the screen so we can see everything. She proceeded to tell us that children do not get lung cancer. He had 6 tumors, that we could see at that time, all over the lungs. There must be a culprit that is causing it all so that is why she scanned more in depth and all over. The bad boy was discovered. Growing there in his pelvic bone.

We had done our research prior to the results on Quincey’s symptoms and the one thing that we came up with was Ewing Sarcoma. When I asked the oncologist, she asked me where I heard of that, I told her. She confirmed that is what he has. Metastatic (spread) Ewing Sarcoma (cancer of bone) There is only 200 cases per year reported in the United States. This is rare childhood cancer that is still under research. No known cause yet.

Our poor baby had been suffering for so long in pain and no one would listen. Finally, someone heard him.

Quincey was immediately admitted to the hospital and a plan was put in place. Surgery for a porta Cath was first then chemo regiment was started. The game plan was attacking this thing full force and very aggressively. Fast forward to October, and we get another scan of the chest. There was only one tumor left. The other 5 are GONE! Cancer is responding to the treatment. So that left us with the one in his bone and one left in his left lung. Now we start talking about surgery for the bone. We opted to do surgery, so we did not have to do radiation. Surgery went very well. They were able to remove about a 3-and-a-half-inch piece of bone along with the tumor itself and replaced it with a biological mesh. Fast forward again to January. Quincey is now able to walk without a walker or crutches and has healed very nicely. We had another scan done 2 weeks ago to see where we are at now. The LAST tumor in his lung went from measuring 7 mm to 4 mm. This child is so strong and is fighting like hell. But we are only halfway there.

New year means new deductibles and copays, etc. With us being a one income family and life outside of cancer does not stop, bills are creeping up on us again. This is where two strong hearted and minded adults must become vulnerable and ask for help. There is still a long way to go to get to the end. Quincey has 9 more rounds of chemo and physical therapy. That is about 4-5 months. There will still be hospital stays and clinic infusions weekly.

Here it goes. Please, if possible could help in any way it would be greatly appreciated. Our family has grown closer together since the start of this journey. If there is anything we could do in return let us know.

Venmo- @Jennifer-Mendez120, Venmo- @Johnny-Mendez-71